TREATMENT … children living with thalassemia undergoing blood transfusion.
WE are often reminded to undergo HIV testing before marriage partner, but have you ever thought of thalassemia testing
Yes, thalassemia testing is also important for couples to be married in order to avoid infection and thalassemia major birth.
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DETECTION … Blood tests can identify carriers of thalassemia in the early stages.
estimated 780,000 to 1.3 million people in Malaysia and 120 carriers of this genetic thalassemia major and 350 babies born each year.
Consultant Haematology Coast Hospital Kuala Lumpur, Datuk Dr Vijaya Cage Jaganathan Naidu, said that thalassemia is a genetic disease that interfere with the formation of red blood cells, red blood normal.Sel patients easily damaged and will produce iron materials are concentrated in several vital organs like heart, brain, liver and kidneys, and broke it.
“thalassemia patients often suffer from low hemoglobin level (anemia) and requires continuous blood transfusion.
“It is a genetic disease or hereditary, in which children have thalassemia gene from a parent. It is not a contagious disease that can not be transmitted through blood, air, water or physical contact. Men and women have equal opportunity to get this disease, “he said recently.
He said there are two types of thalassemia thalassemia minor (thalassemia gene carriers) and thalassemia major (thalassemia sufferers).” br />
“thalassemia gene carriers showed no health problems but a thalassemia gene carriers of thalassemia gene can be put down to children.
” People with thalassemia major showed signs since the age of three to 18 months. Among the symptoms the body is weak and restless, trouble breathing, stomach due to swelling of the liver and spleen, poor growth and no change in formation on the face when the child grows.
“Most importantly, public awareness of the disease is still is low. They need to be more sensitive and have a blood test if the family is a carrier of thalassemia. If you get treatment and advice, it might have been avoided, “he said.
/> Thalassemia type
/> There are two types of thalassemia:
/> thalassemia carriers in Malaysia
/> usually thalassemia sufferers do not show any signs or other health problems. Detection of thalassemia genes can only be revealed to him. If the parent is a carrier, the following conditions may occur.
/> Percentage risk for each pregnancy:
People with thalassemia
/> If both parents are carriers, the following conditions may occur;
normal /> (Note: Patients of thalassemia usually have a low hemoglobin level of less than 10g/dl) />
Signs and symptoms of thalassemia />
thalassemia carrier usually appears normal child during birth. However, they began to experience severe anemia between the ages of 13 to 18 months.
/> Screening for thalassemia blood test may be conducted at all clinics and hospitals, whether government or private sector.
Take the blood test to check the status of your disease.
thalassemia patients require blood transfusions every month. Without proper treatment, several complications can occur and usually they will die in the teens.
Thalassaemia Association of Malaysia />
/> Association Project Malaysia to link patients with thalassemia, thalassemia, their parents and guardians with members of marginalized communities (eg rural communities). The aim is to increase public knowledge about the disease, creating an interactive two-way relationship by creating a database to facilitate research and policy development.
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